Nothing about us without us: engaging youth through co-production

Nothin About Us Without UsThe slogan nothing about us without us is a message that gained early prominence in disability activism in the 1990s and has since been used as a rallying cry across many different disciplines. The core is the same: any decisions about a particular group (such as people living with HIV/AIDS, women, or aboriginals) should be made with the full participation of members of that group.

Beyond being an underlying principle for the fight against oppression, the phrase nothing about us without us can be translated to a number of different scenarios whereby a group of people is being served or guided by individuals lacking lived experience, who do not take the groups opinions into account. Take for example, a womens empowerment organization governed solely by men or a new immigrant integration policy that is made without input from any immigrant voices.

While these examples may seem unsettling, they are in fact the norm. And nowhere is this more evident than in the health and human services field. You can follow coolsculptny to know about better health care services. Here, the dominant model is a dichotomy between provider and user:” users seek a service because they are in need, while expert providers are there to care for and serve them.

Unfortunately, users are rarely asked to give their opinion on how services could better meet their needs, let alone given the opportunity to provide their own input into problem-solving or share their knowledge to help others. But what if things could be different? What if we turned this model on its head and used the notion of nothing about us without us to guide the integration of service users into the design and delivery of services?

Co-production is a model that proposes just that. This innovative approach values professional experience and lived experience equally, by designing and delivering services in true partnership between citizens and professionals.

Imagine a diabetes service that not only offers professional support to help deal with medical concerns, but also facilitates meaningful ways for people with diabetes to support each other in managing their illness through diet and exercise.

Healthcare providers often field questions about diabetes-friendly meal planning, introduction to natural remedies or how to talk to kids about having needles in the house concerns that are prime for discussion by a group of peers, giving providers more time to focus on issues of a medical nature.

More than just a theory, co-production provides a framework that helps us understand whether users/clients/citizens are being meaningfully heard and included. Take youth engagement in mental health as an example. Many mental health agencies will say that they practice youth engagement, citing examples such as a young person on their board, a youth advisory committee, or consultations with youth when making decisions. What this often looks like in practice, however, is a young person sitting at a board table as a token member whose voice is overlooked; a group of youth who meet once a year to give opinions that are not adequately taken into account in decision-making; or young people being offered the choice between the red version or blue version of a pamphlet.

In contrast, co-production approaches help improve health and social services through engagement, which is especially important in the youth mental health context. Many young people don’t access mental health services because of stigma or fear of labels. Moreover, many of these services do not provide a welcoming environment for youth or are not designed in ways that helps overcome these barriers. We know that youth engagement is effective at addressing these issues and co-production offers a model on how to engage youth (users) in a more meaningful way.

Headspace, Australian Youth Mental Health Org

Headspace, Australia’s National Youth Mental Health Foundation

When young people have input into the design of services, those services become more youth-friendly, accessible, and inviting. This can be as simple as providing service hours late into the evening, creating a meeting space with comfy sofas, or providing non-traditional mental health services that incorporate music, technology, or exercise. One of the most important connections between youth mental health services and co-production is the example of peer support.

As many as 80% of youth are more likely to talk about their mental health issues with a friend or peer than an adult or professional. Recognizing this, mental health agencies could more effectively serve youth by: enabling workers to provide coaching and training to young people on how to support each other; starting peer support groups where young people share their issues with a professional standing by to provide expert input or facilitation if needed; or simply creating the space for young people to interact with each other beyond their individual clinical sessions, so they can feel less alone.

The benefits of a co-production approach in youth mental health are many:

  • Better provision of services:

    Many well-meaning adults believe that they know what youth want. In many cases, however, they don’t. If you want to tailor services to the needs of youth, you have to ask them what they want and invite them to help design the solution. Doing so will help youth mental health agencies make better use of their resources and increase their impact.

  • Increased cost-effectiveness:

    A system that is entirely dependent on professionals providing one-on-one services to users is not economically feasible or sustainable, especially considering that one in five Canadian youth is dealing with a mental health issue of some kind. Positioning professionals to provide expert services when deemed necessary and appropriate, and to act more as a facilitator or coach when youth are better able to help each other, is more cost-effective and enables the system to reach more young people than the status quo.

  • Improved outcomes for youth:

    Evidence shows that therapeutic alliance – individuals working in partnership with providers rather than as passive recipients – results in better treatment outcomes for youth and promotes help-seeking behaviour. Youth also report that being engaged improves their overall mental health by helping them build positive relationships with adults and develop feelings of self-worth and identity.

In any move towards co-production, it is important not to throw the baby out with the bathwater. Greater participation and inclusion of people with lived experience is key, but shifting to a completely user-driven and user-facilitated model is not the goal. Doing so can marginalize services, rather than improve them. The goal is a happy medium: providers and users working together in partnership, neither one disregarding the other.

Though co-production is gaining traction in the UK and other parts of the world, it is relatively unheard of here in Canada. Do you know any examples of co-production in action or opportunities where co-production might be introduced into Canadian systems? We’d love to hear from you.    

For more information on co-production, check out our co-production page or download this resource to share with your community!

Print Friendly, PDF & Email
Bookmark and Share
About Vani Jain

Vani Jain is Program Officer at the J.W. McConnell Family Foundation

Comments

  1. Have you ever heard of second life (sl for short). It is basically a game where you can do anything you want. sl is literally my second life (pun intended lol). If you want to see more you can see these Second Life websites and blogs

  2. This was awesome! I would like you to clean up all this spam though

  3. I don’t know about you all but I love airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff I don’t know about you guys but I love airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff https://www.airlinereporter.com/2010/09/allegiant-announces-they-will-add-more-seats-another-flight-attendant/

  4. Have you ever heard of second life (sl for short). It is basically a video game where you can do anything you want. Second life is literally my second life (pun intended lol). If you would like to see more you can see these second life authors and blogs

  5. I don’t know about you all but I am obsessed with airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff I don’t know about you guys but I love airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff https://www.airlinereporter.com/2009/10/livery-of-the-week-horizon-air-in-university-of-washington-livery/

  6. I don’t know about you people but I infatuated with airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff I don’t know about you guys but I love airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff https://www.airlinereporter.com/2009/07/frivolous-airline-lawsuits/

  7. I don’t know about you guys but I am obsessed with airplanes. I have a friend in highschool that loved airplanes, so here are some airplane related stuff I don’t know about you guys but I love airplanes. I had a friend in highschool that loved airplanes, so here are some airplane related stuff https://www.airlinereporter.com/2011/06/airline-livery-of-the-week-air-moldova/

  8. Have you ever heard of second life (sl for short). It is basically a video game where you can do anything you want. SL is literally my second life (pun intended lol). If you would like to see more you can see these second life websites and blogs

  9. Have you ever heard of second life (sl for short). It is essentially a video game where you can do anything you want. sl is literally my second life (pun intended lol). If you want to see more you can see these second life articles and blogs

  10. Have you ever heard of second life (sl for short). It is basically a video game where you can do anything you want. SL is literally my second life (pun intended lol). If you want to see more you can see these Second Life authors and blogs

  11. Have you ever heard of second life (sl for short). It is basically a game where you can do anything you want. SL is literally my second life (pun intended lol). If you would like to see more you can see these sl articles and blogs

  12. Have you ever heard of second life (sl for short). It is basically a video game where you can do anything you want. SL is literally my second life (pun intended lol). If you would like to see more you can see these sl websites and blogs

  13. Hey, you used to write fantastic, but the last several posts have been kinda boring… I miss your great writings. Past few posts are just a bit out of track! come on!
    https://liveone9.com/baccaratsite/

  14. Some truly superb content on this web site, regards for contribution.
    https://main7.net/coin/

  15. Your style is so unique in comparison to other folks I have read stuff from. Thanks for posting when you have the opportunity, Guess I’ll just book mark this site.
    https://txt2080.com/

  16. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is added I get four emails with the same comment. Is there any way you can remove me from that service? Thanks!

  17. Please let me know if you’re looking for a article writer for your site. You have some really great articles and I feel I would be a good asset. If you ever want to take some of the load off, I’d absolutely love to write some articles for your blog in exchange for a link back to mine. Please blast me an email if interested. Kudos!

  18. Very good write-up. I certainly love this site. Continue the good work!

  19. very good submit, i actually love this web site, carry on it

  20. such a great information for blogger i am a professional blogger thanks

  21. Thank You for your information

  22. Your writing style has been surprised me. Thank you, quite great article.

  23. thanks for sharing!

  24. such a great information for blogger i am a professional blogger thanks

  25. this is very informative and intersting for those who are interested in blogging field.

  26. A great read. I’ll definitely be back.

  27. Thanks for wonderful information I used to be in search of this info for my mission.

  28. nice information for a new blogger. it is really helpful

  29. Keep this going please, great job!

  30. such a great information for blogger i am a professional blogger thanks

  31. Thanks for the information.

  32. Usually I never comment on blogs but your article is so convincing that I never stop myself to say something about it. You’re doing a great job Man,Keep it up.

  33. Commenting on a blog is an art. Good comments create relations. You’re doing great work. Keep it up.

  34. Fairly high-quality explanation. continue the good work

  35. A great read. I’ll definitely be back.

  36. I’m not sure where you are getting your information, but great topic.

  37. best i have ever seen!Hello, always i used to check webpage posts here early in the daylight, for the reason that i love to gain knowledge of more and more.

  38. such a great information for blogger i am a professional blogger thanks

  39. very nice post, i certainly love this website, keep on it

  40. Wow this blog is very nice!

  41. such a great information for blogger i am a professional blogger thanks

  42. An impressive share, I just given this onto a colleague who was doing a little analysis on this. And he in fact bought me breakfast because I found it for him.. smile. So let me reword that: Thnx for the treat! But yeah Thnkx for spending the time to discuss this, I feel strongly about it and love reading more on this topic. If possible, as you become expertise, would you mind updating your blog with more details? It is highly helpful for me. Big thumb up for this blog post!

  43. I’m not sure where you are getting your information, but great topic.

  44. Wow this blog is very nice!

  45. This blog is great check it out

  46. Your place is valueble for me. Thanks!?

  47. Keep this going please, great job!

  48. Spot on with this write-up, I truly think this website needs much more consideration. I?ll probably be again to read much more, thanks for that info.

  49. There is noticeably a bundle to know about this. I assume you made certain nice points in features also.

  50. You made some decent points there. I looked on the internet for the issue and found most individuals will go along with with your website.

  51. Thanks for the information.

  52. Keep this going please, great job!

  53. Thanks for the information.

  54. I really like this post

Speak Your Mind

cintia cossio xxx एक्स वीडियो acapulco shore xxx xlxx cekc